Introducing the Rare Disease Center of Excellence

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CenterWell Specialty Pharmacy offers extra support to patients with rare disease

Rare diseases come with unique health challenges. At CenterWell Specialty Pharmacy®, we help you understand the condition and how to get the most out of your treatment. This includes making sure you get your medication on time. Think of us as your personal support system.

We work with you and your doctors to manage your physical and emotional well-being. And we help whether you have Humana insurance or not. CenterWell Specialty Pharmacy is also now in network with most Medicare plans.

What it means to have the Center of Excellence in your corner

Treatment for rare diseases can be complex. Our goal is to make your treatment straightforward. With the Rare Disease Center of Excellence, you get a team of experts who specialize in your condition. They help patients with alpha-1 antitrypsin deficiency, chronic inflammatory demyelinating polyneuropathy, hemophilia, hereditary angioedema, lysosomal storage diseases/enzyme deficiencies, primary immunodeficiency diseases, Von Willebrand disease, and more.

Some rare diseases require infusion therapy, which can be challenging to go through alone. That’s why we’re here. We coordinate infusions performed by your provider, as well as at-home infusions, and self-infusions. Our team makes sure that you have all the supplies and information you need before you start your infusion therapy.

A team of nurses and pharmacist

You may be getting used to new medications and other changes in your life. Our nurses can help you adjust and understand what to do. Lean on them when you have questions about your treatment, symptoms and more.

We know living with a rare disease can affect your emotional well-being. A nurse will regularly check on your mental health. They can introduce you to support groups, counseling and other resources.

Our licensed pharmacists are here to support you. They can:

  • Check your medications for potential interactions
  • Tell you how to take and store your medications
  • Help manage side effects that bother you
  • Answer questions about your medications
  • Provide support for infusion therapy

A dedicated rare disease team for all your care

There can be a lot to remember about your treatment and medications. Let us worry about the details.

The Rare Disease Center of Excellence gives you a dedicated team to manage everything. A big part of what we do is communicate with your providers and make sure you get your refills on time.

Experienced financial specialists

Medications for rare diseases can be expensive. Do you qualify for financial assistance? We can find out. Our financial specialists may be able to help you save on your medications. They know about assistance programs offered by charities and drug manufacturers. Our specialists can explain your options and walk you through the application process.

Contact us to learn more

The CenterWell Specialty Pharmacy Rare Disease Center of Excellence can provide you with specialized care to manage your condition. For a personal phone consultation, call 855-264-0104. Advocates are available Monday – Friday, 8 a.m. – 8 p.m., Eastern time.

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